July was the warmup
There has been much preparation and testing for what is to come. EVERYTHING is in motion... well almost.
My body is complety confused at this point. So much is going in, out, prodded, electrified, fried, infused, stimulated, flatulated, exhausted and energized. It no longer has a basis for what is real and normal.
I am happy with my Robot Doc. She has a PA that is human and can communicate with other human beings, so all is well. My Neuro Doc can continue to be the agro Robot Doc that she was manufactured to be, who moves at the speed of light, gets things done, and doesnt stop to relate to humans, as long as she has her human PA is there to smooth her hard robot edges and give her a little oil.
I got started on Imuran and Prednisone... Holy shit. All I can say is sweaty pig - Im hungry 24/7, sweatier than normal, dizzy, and have more acne. Prednisone sucks a pigs ass... hopefully I wont have to be on it forever.
Its like I have been a human experiment... the new drugs alone have taken some time to get used to. My body doesnt know what is happening to it. Not even factoring the drugs, the tests were even wierder and more "human experiment". I lie down, while the technician marks up my arms in various nerve points with a pen. After she is done drawing on my arms she then proceeds to place 3 little electrode stickers to to various points and then connect them with wires to a computer. She then pulls out this tazer looking thing - black remote control looking handle with 2 metal prongs sticking out of one end. She shocks me at the various points she has marked all over my arms
Zap! "ouch!... quit it"
Zap! "ouch!... quit it"
Zap! "ouch!... quit it"
and on for about 10-15 minutes. A few days rest and I can look forward to the same thing on my legs! Oh but wait there was also the electrode thing they put on my head. After the tazer test, they had me sit down and placed a swimmercap looking thing with electrode points scattered all around it. These points were about dime-sized, raised, and with holes in the middle. After they squeeze the contraption on your head the extend a metal prong thing in each hole scratch your scalp with it - which is super annoying - and then squeez some gel stuff in it and then take some "tests"... Im sure there are files of every thought I have up in my noggin that the government now has- because it is really important for them to know what the enemy is thinking. Then enemy threat being a crippled faggot who is obviously set out to destroy the morals of society and attack marriage!
There was also some sonogram type thing where they squeez gel on various spots of your cranium and then pule sound waves trough these points. The bussing is a nice disorienting touch tht adds that little bit more of diiizzyness just in case you didnt feel you had enough
So after all of that. Robot Doc got on it and made the insurance company approve an IVIG flush therapy which is apparently really hard to get, because its a new treatment. A nurse come to your home, hooks up an IV to your arm and knocks you out for a good 4-6 hrs. Next thing you know you dont know where you are, who you are, who is this woman doing stuff to your arm, why is it sore, and why am I even more dizzy. Once they stick Bendryl straight in your veins its done, ... they told me it would make me drowsy but that was jsut insane. It completely wipes you out and I almost didnt make it to my bed. 4 days of magic
but I think my eyelids are more open by a good 1/8 to 1/4 inch! wooohooooo!!!!!!
I really hope I dont need to stay on predinose
OK so that is the medical side of things
I got all of my financial situation finally straightened out. This was a bigger ordeal than I imagined, but its finally done and I am in a good financial place now
I turned 30, got all my school stuff done - immunizations, records, etc. Now I am FINALLY registered for classes to go to film school!!!
July was soooo busy getting all of this taken care of, and now it feels like life is beginning all over again. Everything I've waited/and put off my whole life is now happening. Health, Education, Finances, Work, everything just came together in July afdter alot of work and now August is just an amazing new start. Now I jsut need that one other area to come into play
Wednesday, August 02, 2006
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3 comments:
Wow, the treatment/surgery (whatever it was) sounds like it was succesful. I am really happy for you. I am however sorry to hear that you are on meds (and intense ones at that). Prednisone does suck as it is very intense. Are you sleeping much? Does it make you a little depressive? The side effects are so wild when you read the fine print.
Hang in there.
I just found your website - the whole MG thing brought me to it. Funny, it seems you started Imuran and Pred. about the same time I did. I had been doing good all summer, just mestinon. Then I started the South Beach diet and all these symptoms started coming. Slurring speech, weakness in legs, double vision. I hope it has gotten better since the post. I'm a woman, 39. Dxd not quite a yr.ago. Thymemctomy 11-06.
Good luck to you. You're a good writer, but I sense some anger - not that I blame you...
Good evening
Thanks for writing this blog, loved reading it
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